Please join us for a very special GM1 Family Meeting filled with hope. This gathering will be focused on community, clinical research updates, patient advocacy, and inspiration in beautiful San Diego, CA, near Sea World, Legoland, and the San Diego Zoo. Updates on the Axovant and Passage Bio clinical trials will be provided, as well information on the UPenn Orphan Disease Center Natural History Study, and more.
For all the very detailed information regarding the event, please see http://www.curegm1.org
(Optional Meetup at the San Diego Zoo on Saturday the 21st, cost of zoo tickets not covered by the foundation at this time)
Important information regarding childcare, media consent, hotel reservations, travel arrangements, and the full agenda and speaker bios and activities are on the Cure GM1 Foundation web site. This form is for registration only.
Attendees are responsible for all their own travel arrangements and reservations. The foundation is not responsible for refunding hotel or travel expenses. The event itself is free of charge. As a result, the notion of refunds does not apply. Donations are also non-refundable.
Please also feel free to mail questions and concerns to firstname.lastname@example.org.
Media ConsentYou understand and agree that this event will be videotaped, audiotaped and/or photographed, and that your image/likeness/voice may appear in photos/video/audio taken during the event. By registering for this event, you hereby consent to any use, reproduction or publication of any photos/video/audio (or excerpts thereof) containing your image/likeness/voice by or on behalf of Cure GM1 Foundation (and its representatives) for any promotional, educational or general purposes related to Cure GM1 Foundation’s mission, including in websites, social media or other means. You hereby waive all rights to any claims for payment or royalties in connection with such use, copying or publication, as well as any right to inspect or approve any photo, video, or audio recording taken by or on behalf of Cure GM1 Foundation (or its representatives), and you acknowledge and agree that neither Cure GM1 Foundation (nor its representatives) will have any obligation to seek further permission nor notify you before making use of such media or any excerpts of such media. Camp Rare Bear/ Childcare at the GM1 Family MeetingI, the parent/guardian, hereby represent that I am 18 years or older and that I am authorized to grant permission on behalf of the participant(s) under my guardianship. I agree to assume full responsibility for the acts, negligence or omissions of said participant.It is the responsibility of the parent to read and adhere to all guidelines and age restrictions. All children who are under the age of 6 must be accompanied by an adult caregiver at all times. In the event the age guidelines are not followed, a parent may be asked to stay or the child may be dismissed from the activity.By registering for this program, I hereby give permission for medical professionals to provide emergency services to my child(ren) if necessary and agree to hold Cure GM1 Foundation, staff, and their volunteers harmless of any said illness, injury, or disease.It is the responsibility of the parent/guardian to inform staff of allergies prior to the conference.By registering for this program, I further understand and agree that my child(ren) will abide by the general rules of conduct and that violations may result in denial of future privileges and removal from the program activities.I grant and convey to Cure GM1 Foundation all right, title, and interests in any photographs, images, video, or audio recordings of me, my likeness and my child(ren) made by Cure GM1 Foundation in connection with my attendance at the GM1 Symposium.By registering, I agree to the above terms and conditions.